(NF) Neurofibromatosis Research Benefit, Fundraiser & Education

educate the public about Neurofibromatosis (NF) and pediatric brain tumors; to raise awareness and funds for

Rosie’s Favorite Charities

Children’s Tumor Foundation (CTF)

Rosie is Illinois’ NF Hero fighting against Neurofibromatosis and helping to Fuel the Cure!! She raises money for CTF’s “Racing-4-Research” in January each year to support Neurofibromatosis research. Check it out at http://www.ctf.org/racing4research.html and see us with Patrick Dempsey.

Visit Racing4Rosie fundraising page for 2011at: http://www.active.com/donate/racing4research2011/fuelrosie

Children’s Memorial Hospital (CMH)

Rosie raises money for CMH (her beloved hospital) in many different ways, but her new favorite is the CHICAGO Dance Marathon which takes place in March.

Planning for the 2011 Dance Marathon is already underway!

See how you can get involved…visit:

http://www.childrensmemorial.org/friends/foundation/dance_marathon.aspx

Rosie also takes donations for CMH in the form of new toys, books, craft items, etc...

for "Rosie's Toy Box" see the details below.

Pediatric Brain Tumor Foundation (PBTF)

Rosie is just one of PBTF’s “Stars” who ride in the “Ride for Kids”. It’s one of Rosie’s all time favorite events where hundreds of motorcyclists come together and ride for a great cause. The Ride for Kids supports pediatric brain tumor research; they are helping to find the cause and a cure for pediatric brain tumors. www.pbtfus.org/rideforkids

Each year Rosie tries to get more motorcycle riders involved by promoting not only awareness for pediatric brain tumor research but the event itself. With team “Riding for Rosie”, come out and join us! http://www.firstgiving.com/2010RidingforRosie

To Make a Direct Donation to Rosie

Please make checks payable to “Rosie” and send your gift for her care to:

Research for Rosie

PO Box 725

Palatine, IL 60078

Thank you for your generosity and caring!

Other organizations that support families of kids with cancer,

and who have blessed our lives, are:

Beads of Courage www. beadsofcourage.net

Bear Necessities-Pediatric Cancer Foundation www.bearnecessities.org

Cal’s All-Star Angels Foundation, Inc. www.calsangels.org

CarePages www.carepage.com

Gabe’s Chemo Duck Program www.gabesmyheart.com

Helping from Heaven-The Lexi Kazian Foundation www.helpingfromheaven.org

Friends of Jaclyn’s Foundation www.friendsofjaclyn.org

Make-A-Wish www.wish.org

SuperSibs www.supersibs.org

There’s a Monkey in my Chair www.monkeyinmychair.org

TLC Camp www.tlccamp.org

Wellness Place www.wellnessplace.org

Don't forget to check out our current events for more information about our lastest efforts to

We are also very passionate about offering support to families going through similar experiences in dealing with NF or a pediatric brain tumor. It is our hope to reach out to and assist families so they know they are not alone, that someone else understands what it is to have a critically ill child; to help with feelings of despair and hopelessness. To help navigate through the overwhelming treatment options or just to lend an ear to listen or provide a shoulder to cry on.

5-year-old daughter, Rosie and other kids like her who live with the devastating effects of NF or who are fighting for their lives everyday against brain cancer.

Sibling Support is also very crucial. We also encourage parents to seek out help from organizations like SuperSibs. Rosie has a 10-year-old SuperSib named Bella!!

We want to share Rosie's story to educate other parents of the signs and symptoms of this disorder, as well as, educate the public and encourage people to get involved...to make a difference in the life of a child like Rosie!