The main goal of our website is to raise awareness and funds to support research for both Neurofibromatosis (NF) and pediatric brain tumors; and ultimately help find cures for both!!
We are also very passionate about offering support to families going through similar experiences in dealing with NF or a pediatric brain tumor. It is our hope to reach out to and assist families so they know they are not alone, that someone else understands what it is to have an ill child; to help with feelings of despair and hopelessness. To help navigate through the overwhelming treatment options or just to lend an ear to listen or provide a shoulder to cry on.
Our passion to assist in anyway we can comes from our love of our 4-year-old daughter, Rosie and other kids like her who live with the devastating effects of NF or who are fighting for their lives everyday against brain cancer.
We want to share Rosie's story to educate other parents of the signs and symptoms of this disorder, as well as, educate the public and encourage people to get involved...to make a difference in the life of a child like Rosie!
About the Children's Tumor Foundation (CTF):
CLICK HERE TO VIEW VIDEO
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